Appendices - Patient Narratives

(The Thought Experiments)

I created thought experiments in the form of ‘stories’ based on a set of fictional  personas with different backgrounds and disease aetiologies representing the intended residents for the design. Narratives for these people were created at various points in their experience of the building to help visualise the experience. These narratives formed the thought experiments. The act of writing these provided an invaluable design tool by sharply focusing on the experience of the architecture. During the writing process, I had to put myself in that person’s shoes and imagine what they could sense, smell, what this might remind them of, how certain building elements ‘felt’: the heaviness of the thick eaves, the warmth of the air and the sounds associated with that space. How all these things were blended together to create the feel of the place. This was repeated when design changes were made and the effects of these design changes were explored in this way. Janet Frame’s autobiographies[1] helped to ‘put myself in their shoes’, as did several other sources of patient and caregiver narratives[2] and the NZ film ‘The Dark Horse’ (an obvious influence seen in fictional patient Jubilee Potini).



[1] Janet Frame, An Autobiography. To The Is-Land. An Angel at my Table. The Envoy form Mirror City. Auckland: Random Century, 1989. 
[2] Many references included staff and patient narratives, but the two specifically used were Diana Gittens’ Madness in it's Place. Narratives of Severalls Hospital, 1913-1997 and Madness, Architecture and the Built Environment. Psychiatric Spaces in Historical Context, edited by Leslie Topp, James E Moran and Jonathan Andrews.


The following ‘stories’ were developed alongside development of the design itself, informing the design as thought experiments. They were used to explore the experiential properties of the design, using imagination rather than the usual models and sketches.

Scents of Home

[Amber Jones: 31 years, anxiety disorder, recent suicide attempts; worked in a community library, enjoys swimming, reading; domestic situation, mum and younger brothers live in Christchurch but whenever she returns her condition worsens - best friend was killed in the earthquakes, can no longer cope on her own but no suitable friends or family in Auckland]

Arrival I. Amber [acute psychiatric ward, to be treated]

Arrival was fast, sharp, and noisy with people yelling and everything zigzagging in my head. A dull throbbing in my wrists. I couldn’t see the hospital (lying in the ambulance) so I can’t say it made a good first impression but I can imagine what it looked like – an efficient building, busy with vents and fans, trying to be friendly, making a real effort.
There was a huge welcoming committee; I was the centre of attention but now they’ll be fussing over someone else.
Moving quickly through uncomfortably luminous corridors with banging doors, feet first, horizontal with the ceiling flitting by. You’d think they’d give you something soothing to look at... flat on your back feeling out of control as you’re being whisked away to stitch up your wrists. Instead there are just strange flickering lights, smoke detectors, sensors sensing unknown things, cameras (trying to be discrete), grids, vents....flying past in a blur...
Shiny anonymous easy to clean walls and floors with a faint whiff of...nothing...or at least nothing I can recognise, perhaps it’s cleaning product or dead flowers from someone’s room, discarded.
This place is a hospital. I would recognise it anywhere. Just like the movies, or Shortland Street, or visits to Gran when she was dying.
Glimpses of trees through the windows, everything through glass. Look but don’t touch. Everyone can see me and there’s nowhere to hide, not even the bathroom. No rails to hang things (or yourself). No space that feels like mine, every room looks the same. I panic when I can’t quickly find my room. Things are fuzzy in this too bright room with no rails or sharp things, no smells, no mess, nothing. This is definitely not home.
Arrival II. Amber [kingseat, to live]

Driving slowly up the driveway with that view!. It let all those fireflies loose in my stomach, sending sparks all the way out to my fingertips, leaving smoking tendrils of nausea. A ghost of a building with it’s white sun scorched walls. The glow of the setting sun silhouetting strangely irregular folding shapes where the roof line should be, almost like a blanket had settled there.
This is not a building trying to be friendly.  But a second glance suggests something else, perhaps there is something unexpected inside. The driveway sweeps us around the building’s reflected watery twin, past freshly mown grounds releasing their green scent of freshly cut grass undercut with faint traces of petrol and manuka smoke. Wafting in uninvited, interrupting my anxiety with memories of sunny Saturday afternoons with Dad mowing the lawn then lighting the BBQ.
We drive right past the heavy ominous entrance door with its gaping mouth, not stopping. The fireflies slowly settle and my fingertips and lips stop tingling. The further around we drive, away from that entrance door, the safer I feel until the car finally stops at another door. It looks the same! (I feel cheated).
I’m ushered quietly under the heavy eaves, gravity pulling at my legs. The solid steps, dark chill porch, then the heavy solid door, wood smoothly worn by a thousand hands near the brass handle. Thick ancient glass panels ominously distort the view beyond like some bad horror movie scene. My feet have a life of their own, heading up the dark stairs despite me. Glancing down at those traitorous feet and noticing the intricate detailing on the tiles, I wonder who thought it was worth using such beautiful tiles on us, the no hopers.  What a surprise.
Another world slowly emerges as the stairs break through the roof. Above the building, in the late afternoon sky. Fireplace smoke mingles with the heady scent of Hoya. With an involuntary sniff I’m transported back in time again to my Gran’s patio where Hoya clung to the warm brick walls, releasing it’s scent in the late afternoon sun.
 Expectations of sterile, wiped clean floors squeaking against my sneakers and the faint whiff of disinfectant are replaced with the smell of fresh leaves and warm tiles as I’m shown to my room.
Anxiety is replaced with comfort and a sense of home, the scents of home.


The Redemption of Abe Livingston

[Abe Livingston: 46 years, schizophrenia; trained as a landscape designer, played rugby, has a dog (Obi); domestic situation, elderly parents in Rotorua, ex wife in Auckland, domestic life exacerbated his condition resulting in periods of time living on the streets]

Arrival I. Abe [acute psych ward, to be treated]

Arrival was blurred and in slow motion but I couldn’t sit still. Hard edges and sterile cramped corridors. What are all those sensors and cameras for? Who is watching me? I can’t really remember my first impression of the hospital, everything was too mixed up with other thoughts crowding in.
But I do remember the chapel. I could be still and feel quiet there without the drugs. Felt a bit weird but also comforting knowing the chaos of the wards was just outside. I could hear my own breath. That old church smell, even though it wasn’t that old: incense & wax, rubbed wood, old-hymm-book smell. Mum & dad dragged me along to church as a kid and I sat for hours on those hard wooden seats, memorising all the lines in the wood or the creases in Doug’s suit in front of me.
Outside the chapel, the hospital was cold and white with anonymous corridors not giving away any evidence of use – scrubbed out beyond trace. But the chapel was warm with its cracked leather seats that had supported hundreds of bums, the wooden tops of the pews rubbed smooth from supporting arms and elbows bent in contemplation to pray, or cry. 
Arrival II. Abe [Kingseat, to live]

We slowly drove up the grand entrance drive with huge Phoenix palms towering over us in the dark like living power poles (when I was a kid I used to imagine the Desert road pylons were walking alongside our car when we weren’t watching). 
I feel like I already know this building. Familiarity sends shivers up my spine. Damn. I thought it would be different. Behind the warm yellow lights in the windows are familiar outlines of the past. But glancing up, the lights on the roof promise something different and unexpected, jolting me out my memories.
Instead of entering at the front, we keep driving around the back where the lights are more welcoming. I smell dinner cooking, a roast - like Sunday after church with my mum in the kitchen fussing over the gravy. My dog sneaking silver beet doused in gravy under the table. My dog...we’re allowed pets here which is the only reason I’m here, I think. If I hadn’t been able to bring Obi...
I’m helped out of the car with Obi sniffing and straining to catch the aroma of roast beef. Imagine that, cooking roast beef for us! The entrance is warmly lit, guiding us up towards the door with the same feel as those wooden church pews. The same smell.
The walk up the steps through the roof and into the night air and stars is magical. Puffs of our breath and Obi’s snuffling and whining to be let free. Crickets and moreporks have replaced the constant staccato of car tires, helicopters overhead, sirens in the distance of life under the bridge. My thoughts have room to organise themselves here, like the chapel.

Somewhere New

 [Jubilee Potini: 38 years, bipolar disorder; spent much of his young adult years in psychiatric hospitals, parents both dead, older brother is a patched gang member in Gisborne; was a chess champion at school, used to fish with his brother; domestic situation, homeless or living with friends who are unable to provide the support he needs]
Arrival I. Jubilee [acute psych ward, to be treated]

The phoenix palms welcome me back - I’ve been here so many times. I know the drill, I can be calm now, it’s my home. Hoki mai ki te wā kāinga.
The outdoor courtyard is where I go, if they have one. Day or night, sitting outside with my eyes closed hearing only the sounds of bees and cicadas, or crickets, smelling the warm earth of the garden, and feeling the heat of the sun or the fresh night air on my bare skin. I imagine I’m somewhere far away from the glaring walls and shiny floors. I’m back at the river me and my brother used to play in. I can smell the water and feel it rushing around my ankles as my feet grip the smooth river stones.
I’m led inside where needles prick and a warmth dampens all those thoughts in my head, the mantras which hold me up and stop the collapse. But I can fall here. It’s safe.
Arrival II. Jubilee [kingseat, to live]
I’ve been here before. The palms and stern mouth of the building from memories of when I was still just a scared kid. Later the buildings were newer and bland. But I’d always be taken to the side entrance, the one for loonies. This time we keep driving right around to the back, to a different looking entrance but I know it’ll be the same inside. They all are. I always end up in a place like this.
They talk to me with dignity and respect here, not like some mental patient. I like that. They take me upstairs (upstairs?) to my new home - we’re up in the sky, I can see so much up here, I’m part of the sky looking down on all those other people. Like Maui. I feel so light up here. I have to concentrate on walking where then path slopes and the becomes sand and pebbles. The sound of trickling water somewhere (where?) - perhaps I’m imagining a river. Cicadas, and pigeons. A new place.
They tell me there’s space for my whanau to stay with me sometimes, whenever I want. But not for good, aye, anyhow they wouldn’t like staying too long in a loony bin - it’s not really though, I guess. Doesn’t feel like one up here.
Glancing up the next flight of stairs I catch a glimpse of something which slows the jittering in my fingers. There are 2 people up there sitting in the sun, playing chess...

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